Tag Archive: genomic justice

The increasing complexity and dispersion of ethical issues in research on science, technology and society call for multidisciplinary involvement in research design and conduct. Yet the epistemological assumptions, skills, and methods for tackling what are termed “ethical” issues vary across fields of scholarship. This proposed workshop will take place on the heels of and extend the discussion of the U.S. Congress’ interest to identify the contours of ethics in science research via the America Competes Act of 2007. As a way of narrowing down this vast field, this workshop will bring together science and technology studies scholars with training in philosophy, sociology, anthropology, and other fields whose research approaches ethics in science and technology from the perspective of justice. The objectives of this proposed workshop are twofold:

1) To provide a space and dialogue for multidisciplinary reflection on the relationships among science, knowledge, ethics, and justice.

2) To document shared and divergent approaches to ethics in science and justice with a focus on the meaning and practice of socially and/or politically engaged research.

In order to create substantive dialogue, the workshop will be oriented around the three themes situated at the intersection of science, ethics, and justice. These themes are environmental justice, reproductive justice and genomic justice.

 

Where:
Health Equity Institute
San Francisco State University (SFSU)
San Francisco, CA

Organizers:
Laura Mamo  (SFSU)
Jennifer Fishman (McGill University)

Genomics, Governance, and Indigenous Peoples (November 6-7, 2008) gathered together 12 scholar practitioners to discuss the promise and perils of current efforts to transform indigenous peoples’ governance of genomic research. Invited participants included experts in human genetics and the social, legal, and ethical aspects of genomics in different national and cultural contexts. Individual participants have experience working within existing regimes of governance, and they see a need for policy innovation and change in relation to genomic research. Some participants are already engaged in experimental efforts to create change. Participants engaged in several facilitated dialogues organized around several themes including property, sovereignty, and the “politics of representation” (who represents whom and who decides?) First conceived as a workshop focused on the United States and “tribal” governance of genomics, the workshop has broadened to include scholar practitioners working in other parts of the world in recognition that strategies for governing genomic research cannot be contained by national borders. Workshop outcomes will be relevant for indigenous governance within multiple national contexts. They include an edited, multi-authored volume, and a policy paper focusing on the core themes of the workshop: property and various forms of sovereignty as those are informed by both domestic and international structures of law and policy. The workshop was funded by the National Science Foundation (NSF).

Participants:

 

Back (left to right): Philip (Sam) Deloria, Brett Lee Shelton, Nanibaa’ Garrison, Terry Powell, Paul Oldham, and Kim TallBear. Front (left to right): Nadja Kanellopoulou, Jenny Reardon, Pilar N. Ossorio, Rebecca Tsosie, Brian Wynne, and Laura Arbour.

 

Where:
College of Law
Arizona State University (ASU)
Tempe, AZ

Organizers:
Kim TallBear (University of California, Berkeley, UCB)
Jenny Reardon (University of California, Santa Cruz, UCSC)
Rebecca Tsosie (Arizona State University, ASU)

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