Through the GGIP initiative we seek to build a network of scholar practitioners working at the intersections of genomics, governance and indigenous peoples movements. Our network members include experts in human genetics and the social, legal, and ethical aspects of genomics in different regional, national and cultural contexts. A common goal is the search for change and innovation within existing regimes of governance in relation to genomic research. Click on the name of each member to be redirected to his or her Web Pages and learn more about their interests and research. They can be contacted via email.

 

Laura Arbour

Dr. Laura Arbour is an Associate Professor in the Department of Medical Genetics and the Island Medical Program at the University of British Columbia based in Victoria BC. Her clinical practice and research focuses on northern and aboriginal health issues as they pertain to genetics. Her research is directed towards conditions with a genetic component prevalent among Canadian Aboriginal populations, such as congenital heart defects in the Inuit of Nunavut; Long QT Syndrome in Northern British Columbia, primary biliary cirrhosis in the Pacific Northwest, and carnitine palmitoyl-transferase deficiency type 1A in the three Northern territories. Part of her work has entailed exploring the significance of carrying our genetic research with aboriginal communities. The work that she and others did, established the concept of “DNA on loan” which was subsequently adopted by the Canadian Institutes for Health Research: “Guidelines for Heath Research Involving Aboriginal People”.


 

Carlos Andrés Barragán

Is a Ph.D. Candidate at the Science & Technology Studies Program at the University of California, Davis. His dissertation project ‘Situating genetic expressions: Human genomic research and bio-identity in Amazonia’ explores forms of individual and collective identity emerging from human genetic and genomic research involving ethnic minorities in the Colombian and Brazilian Amazon. Andrés can be reached at: cabarragan@ucdavis.edu

 

 

Philip Sam Deloria

Philip Deloria is Director of the American Indian Graduate Center. He attended both undergraduate and law school at Yale University. Formerly, he was the Director of the American Indian Law Center, Inc., for over 35 years. Under Mr. Deloria’s direction, the American Indian Law Center performed groundbreaking work in the analysis of Federal Indian policy, including helping to define the role of tribes in the federal system. The Law Center has also taken the lead in strengthening tribal government institutions. He will remain active as one of the premier analysts of Indian policy in the nation. He was a founder of the Commission on State-Tribal Relations in 1976. He is a member of the National Institutional Review Board for the protection of human subjects of research established by the Indian Health Service. Mr. Deloria was the founder and first Secretary-General of the World Council of Indigenous Peoples.

 

Nanibaa’ Garrison

Nanibaa’ Garrison (Navajo) is a post-doctoral fellow at the Stanford
Center for Biomedical Ethics in the Center for Integration of Research
on Genetics & Ethics. She earned her Ph.D. in genetics at Stanford
University. Among her current projects is research on the impact of
the recent Havasupai lawsuit on genetic research ethics and practice,
and research on opinions and attitudes of the Navajo Nation on genetic
research. Nanibaa’ can be reached at: nanibaa@stanford.edu

 

Nadja Kanellopoulou

Nadja Kanellopoulou is an academic lawyer who specializes in medical law, intellectual property and bioethics. She is based at the Arts & Humanities Research Council (AHRC) Research Centre for Intellectual Property and Technology Law, University of Edinburgh, Scotland, UK. Her doctoral research on “Group Rights in Biolaw – A Model Approach: examined legal, ethical and social aspects of group involvement in genomic research. She was previously a research fellow at theEconomic & Social Research Council (ESRC) Genomics Forum working on several areas of genomics and health policy (e.g. gene banking, research commercialization, stem cell research regulation). She is interested in comparative studies of science, technology and public health, with particular focus on human tissue governance, property rights in the body, regulation of reproductive technologies and politics of expertise in health-related innovation.

 

Emma Kowal

I am postdoctoral research fellow supported by a National Health and Medical Research Council Aboriginal and Torres Strait Islander Training Fellowship. I am a cultural anthropologist and I have previously worked as a doctor and public health researcher in Indigenous health settings. My previous work in Indigenous health research has included projects on mental health/social and emotional wellbeing, Indigenous community health initiatives and child health. My current areas of interest include: (a) Australian racial politics, especially Indigeneity and Whiteness,  (a) settler-colonialism and post colonialism, (a) technoscience, especially the new genetics, (a) all aspects of Indigenous health, (a) bioethics, biopolitics, and public health, (a) the anthropology of development. Emma can be reached at: e.kowal@unimelb.edu.au

 

Paul Oldham

Dr. Paul Oldham is a social anthropologist specializing in issues surrounding the human rights of indigenous peoples and biodiversity. Paul trained at Lancaster University (B.A. Hons.), Cambridge University (M.Phil.) and carried out doctoral research at the London School of Economics and Political Science. Paul has carried out extensive fieldwork with the Piaroa (Wothïha) in the Venezuelan Amazon and in 1993 worked to establish the Regional Organisation of Indigenous Peoples of Amazonas (ORPIA) for whom he continues to serve as an independent adviser. Between 1996 and 1999 Paul served as the Convenor of the Masters Programme in Environmental Issues at the Institute of Latin American Studies, University of London. In 1999 Paul turned to international policy work as a member of the Forest Peoples Programme and later at the Secretariat of the International Alliance of Indigenous and Tribal Peoples of the Tropical Forests. In 2002 Paul returned to academia as a member of the Anthropology Department at the University of Durham before joining CESAGen in 2003 to work on the flagship project Indigenous Peoples and Globalisation of Genomics in Amazonia. Dr. Oldham’s research interests principally focus on the rights of indigenous peoples and the United Nations Convention on Biological Diversity. Dr. Oldham is a regular participant in events under the Convention and serves on the Advisory Board of the International Working Group for Indigenous Affairs (IWGIA) in relation to this issue.

 

Pilar N. Ossorio

Dr. Ossorio is Associate Professor of Law and Bioethics at the University of Wisconsin at Madison (tenured in the school of Law and the school of Medicine & Public Health). Dr. Ossorio received her Ph.D. in Microbiology and Immunology from Stanford University in 1990. She went on to complete a post doctoral fellowship in Cell Biology at Yale University School of Medicine. In 1993 she served on the Ethics Working Group for President Clinton’s Health Care Reform Task Force. In 1994 she left the laboratory for a position with the Department of Energy’s Program on the Ethical, Legal and Social Implications (ELSI) of the Human Genome Project. She then went on to law school and received her JD from the University of California School of Law in 1997. During law school she received several awards for outstanding legal scholarship, and following graduation she was elected to the Order of the Coif, a national legal honor society. Dr. Ossorio currently serves on the Director’s Advisory Council for the National Human Genome Research Institute (NHGRI), and as an advisor for the 1000 Genomes Project, the Human Microbiome Project, and for NHGRI-related tissue banking activities at Coriell. She currently serves on the Human Embryonic Stem Cell Research Advisory Committee for the Institute of Medicine (IOM), and she has served on several previous National Academy boards and committees. She is a fellow of the American Association for the Advancement of Science (AAAS). Her current research interests include: governance of large scale research projects; community consultation as an ethics method; issues at the intersection of race, research and justice; and ethical/legal issues in genome-wide genetics research (GWAS and large-scale sequencing).

 

Terry Powell

Terry Powell was born in Cordova, and grew up in Bethel and Kodiak, Alaska. She is a graduate of the University of Alaska, Fairbanks. Terry is the daughter of Bob and Esther Mulcahy, the eldest of five children and a lifelong Alaskan. Terry is a member of the Chugach Alaska Corporation and the Eyak Corporation. She has been a member of the Alaska Area Institutional Review Board since 1994, and currently serves as the IRB administrator. Her interests include research ethics, health care research, and bioethics. Terry has been married to her college sweetheart John for 28 years, and is the proud mother of two adult children. In July you will find Terry fishing for salmon on the Kenai River with her family.

 

Jenny Reardon

Jenny Reardon is an Associate Professor of Sociology and Faculty Affiliate in the Center for Biomolecular Sciences at the University of California, Santa Cruz. Dr. Reardon’s research and scholarship investigates how novel forms of technoscience (such as genomics and nanotechnology) are constituted along with novel forms of governance and modes of constructing human identity. She is a primary organizer of the Science and Justice Working Group and the co-director of the Science and Justice Training Program at the University of California, Santa Cruz. Her first book, Race to the Finish: Identity and Governance in an Age of Genomics, was published with Princeton University Press in 2005. She is currently working on a second book manuscript entitled The Post-Genomic Condition: Technoscience at the Limits of Liberal Democratic Imaginaries. Jenny can be reached at: reardon1@ucsc.edu

 

Brett Lee Shelton

Brett Lee Shelton is a partner in the law firm Shelton and Ragona, LLC, of Louisville, Colorado, and he has practiced Indian Law since his graduation from Stanford in 1996. His work experience also includes national and international activism surrounding research in indigenous communities, work as a policy analyst for the National Indian Health Board, work with the Native American Rights Fund, and numerous radio interviews in the United States, Canada, and Aotearoa/New Zealand. His current work in research includes sitting on the Oglala Sioux Tribal Research Review Board in Pine Ridge, South Dakota from the start of this organization that was delegated power to review all research proposals involving tribal members as subjects or to be conducted within tribal jurisdiction.

 

 

Kim TallBear

 

Kim TallBear is Assistant Professor of Science, Technology, and Environmental Policy at the University of California, Berkeley. She is a member of the Sisseton-Wahpeton Oyate in South Dakota, and a council member of the Native American and Indigenous Studies Association (NAISA). You can follow her musings on science, technology, and culture on her blog @ www.kimtallbear.com, and on Twitter @NDN_DNANotes and @STS_NDN. She has a monograph, Native American DNA: Origins, Race, and Governance, forthcoming in 2012 with the University of Minnesota Press. Kim can be reached at: kimberly.tallbear@berkeley.edu

 

Rebecca Tsosie

Professor Tsosie teaches in the areas of Indian law, Property, Bioethics, and Critical Race Theory, as well as seminars in International Indigenous Rights and in the College’s Tribal Policy, Law, and Government Master of Laws program. She has written and published widely on doctrinal and theoretical issues related to tribal sovereignty, environmental policy and cultural rights, and is the author of many prominent articles dealing with cultural resources and cultural pluralism. Professor Tsosie also is the co-author with Carole Goldberg, Kevin Washburn and Elizabeth Rodke Washburn of a federal Indian law casebook. Her current research deals with Native rights to genetic resources. Professor Tsosie annually speaks at several national conferences on tribal sovereignty, self-determination, and tribal rights to environmental and cultural resources. Professor Tsosie joined the College faculty in 1993 and served as Executive Director of the top-ranked Indian Legal Program from 1996-2011. She was appointed as a Willard H. Pedrick Distinguished Research Scholar in 2005 and, before that, she held the title of Lincoln Professor of Native American Law and Ethics. Professor Tsosie, who is of Yaqui descent, has worked extensively with tribal governments and organizations and serves as a Supreme Court Justice for the Fort McDowell Yavapai Nation.


 

Brian Wynne

Professor Brian Wynne is Associate Director of the Centre for Economic and Social Aspects of Genomics (CESAGen) at Lancaster University, U.K. He is a Professor of Science Studies and Research Director of the Centre for the Study of Environmental Change (CSEC) at Lancaster. He is also Principal Investigator on two CESAGen Flagship Projects, Plant Genomics and Indigenous Peoples. His education includes MA (Natural Sciences, Cambridge 1968), PhD (Materials Science, Cambridge 1971), and MPhil (Sociology of Science, Edinburgh 1977). His work has covered technology and risk assessment, public risk perceptions, and public understanding of science, focusing on the relations between expert and lay knowledge and policy decision-making. He was an Inaugural Member of the Management Board and Scientific Committee of the European Environment Agency, (EEA), (1994-2000) and a Special Adviser to the House of Lords Science and Technology Select Committee Inquiry into Science and Society, (March 2000). He is also a member of the London Royal Society’s Committee on Science in Society.


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